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Please visit my blog on pain from neurofibromatosis (spinal tumors) It's a combnation of uplifing stories and very difficult ones! Feel free to contribute my sending your stories to me at [email protected] and I'll post them. Or start your own blog....it's very useful! nfpain.blogspot.com

I have a genetic disorder called neurofibromatosis (NF). It is far to complicated to explain this disorder, but in my case, inoperable spinal tumors have left me in horrific pain all the time. I mean 24/7. Yikes. Besides all the meds, I do acupuncture, reiki and just about everything else...